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Showing posts with label inclusion. Show all posts
Showing posts with label inclusion. Show all posts

Wednesday, August 5, 2015

Inclusion Story


I wrote this recently in response to a writing challenge from "The Mighty", a website to which I've become a contributor.  They don't use every story submitted to them, so since they didn't use this one I thought I would share it here. 

After six years in a self-contained therapy centered special education school located several towns away we decided to bring our daughter back into our town schools for her education.  We wanted her to know that she is part of the community where she lives.  It was a scary thing to do as the class she would join had recently relocated from an elementary school to the middle school, and she would be one year younger than the sixth graders. We didn’t know how welcoming the general education staff nor school administration would be but hoped for the best, and prepared to fight for inclusion if necessary. The principal was welcoming of the class, and seemed generally supportive.   If there is one person I could credit with the success of the transition for both Hillary and our family it would be the chorus teacher.  He embraced her and her classmates and helped the other students understand how to interact with kids who were differently abled.  Even though Hillary and her classmates were all nonverbal and had a myriad of serious challenges he fostered an atmosphere of acceptance and focused on what people can do, not what they cannot do.  He stood up to the few concerned parents at back to school night who were afraid that somehow this group of differently abled students would lessen the class for their typically developing kids.  With the help of her teacher and through the use of dance routines, adapted rhythm instruments, assistance from classroom staff and student volunteers my daughter and her classmates were able to fully participate in concerts, Christmas caroling, and other music related activities over the years.  We were even able to see something we never dreamed possible in both of our girls on the stage in a concert together.  He included them in keyboard labs, and made sure he told us how excited Hillary was to be making her own music on the keyboard. He attended Hillary’s IEP meetings with positive input.  This wonderful teacher brought his other classes to my daughter’s classroom to visit and participate in special activities and for birthdays to sing happy birthday to the honoree.  Because of his attitude and efforts, Hillary was able to make friends and be known in her town as part of the community, not just the girl in the wheelchair.  When she graduated from the middle school it was Mr. D who asked us personally to please allow her to participate with her peers in the graduation ceremony, as not all the parents of her self-contained class in years past had allowed their child to do so. He assured us that we would be able to sit in the front row right in front of her so that if she had a seizure or needed us we would be right there.  We agreed and are glad we did.  Four years later when she graduated high school we invited that teacher to be Hillary’s honored guest and he gladly accepted.  I have no doubt that without such a special person acting as a bridge between Hillary’s world and other students the transition to our town school would have been much more difficult for all of us.
The results of our decision are still being felt in that when we are out and about in town or a surrounding community we generally run into someone who knows Hillary from school and approaches to say hello.  I'd say this is really a success story for inclusion.

Wednesday, April 17, 2013

Recognition


While our high school robotics team was hosting a huge competition, and our girls lacrosse team was holding a fundraiser, three of our high school students traveled to Stratford, NJ for the state finals in Special Olympics Bowling.  I can assure you this was no easy feat for those three athletes, and meant as much to them as any other event meant to other students, and perhaps more.  You see, these three youths don’t get many chances to succeed, let alone excel.  The joy and pride they show when their name is called when results are announced is astounding.  As a parent, I watch with mixed emotions; a whole pot full of simmering emotional stew in fact.  While I am pleased that my daughter has come this far, I am displeased at how inconvenient the weekend has been.  I am glad that she has had this opportunity, but sad that she has so few opportunities to participate in activities in which she is not simply a spectator.  It will be nearly another year before she has the chance to participate again, and while I am somewhat relieved by not having my Saturday mornings planned in advance, I am upset for her knowing that there will long expanses of time unfilled with meaningful activity.  So it was, with all that running through my mind that we sat as a family at the most recent town council meeting. We waited through awards and acknowledgements for our police force; a citizen who had been instrumental in capturing a bank robber; and our girl’s high school track team’s winning seasons until it was Hillary’s turn.  Our mayor and town council were recognizing the achievements of Hillary and two of her classmates’ participation and success in the state level Special Olympics bowling competition.  As I wheeled Hillary up to the podium as her name was called I was able to see the faces of the others present.  What I remember is the look of astonishment and pleasure on some of those faces.  Hillary was the only one in a wheelchair, and if you have never been involved in the Special Olympics bowling, you may not know that there is a ramp bowling division.  It lasted only a few moments, but they are moments I won’t forget.  Once we were home and she was tucked into her bed, I had time to reflect upon the recognition bestowed upon my humble daughter.  I felt proud not just of her and of us for taking her to events, but of our town.  It is not perfect, but I am proud to say I live in a town where someone like Hillary is given a certificate of recognition by the mayor.  Any recognition of the difficulties she overcomes to participate and succeed are most welcomed, and restore in this mother’s heart the hope that somehow, Hillary is making a difference in our small corner of the world, and can truly feel that she is part of our town.

Wednesday, January 20, 2010

Bittersweet

So I went to a concert today at Hillary's school to see her perform with the chorus. They did a program about Martin Luther King, Jr. It was nice, and they had Hillary with her aide on stage with the chorus and she was playing a drum and a tambourine. As I sat there I was torn between being happy that she was being actively included in something that she obviously enjoyed, and feeling kind of sad and tired of watching Hillary doing pretty much the same thing and feeling like I was pretending that she could really do it herself. It was bittersweet to be sure. Most of what I do with Hillary is bittersweet. Happy that she is being given the chance to do "normal" things and have a happy life, sad that she can't enjoy them the same way that I would. But if she is enjoying things in her own way, why should that be sad? We all experience life in a slightly different way, no two people take the same thing away from a shared experience.