The final
school year for Hillary began last week, and her 21st birthday is
coming in a few days. It’s the beginning
of the end of life as we know it.
I’m glad for me that this is the last year I
will have to fight with the school system to give my daughter the services she
needs. I’m so sad for her that in just
10 short months she will move on to a place that is not filled with young
people and lots of hub bub. Things will
be different for both of us, as I will be unable to work the hours that I do
now since the day program I hope she will attend runs 2 hours less per day than
school does. Change is hard, even when
it’s expected! There are so many things
up in the air and I find the unknown to be unnerving to say the least.
Once a
developmentally disabled person becomes an “adult” at the age of 21, they are
no longer eligible for public school. They
may finish out the school year in which they turn 21 but then they
graduate. They are then at loose ends,
out into the great abyss of the world where no school bus comes to pick them
up, and no staff waits to greet them and help them through their day. My daughter is “lucky” because she is so
disabled as to be eligible for a medical day program. At least there will be something for her to
go to so she doesn’t have to just stay at home with me, bored out of her skull,
days broken up only by trips to the mall or supermarket or library. What kind of life is that? Although it’s not about me, I am affected by
it all. I will need to find a new job, a
prospect I don’t look forward to at all.
In the
meantime, I’m determined to try and enjoy this final school year, and my final
year at this job with people I so love working with.
1 comment:
Oh, Sue, I think you have grown into a wonderful person over the years! Navigating through the rough waters life throws at us sometimes takes such strength and you certainly have it. I see a challenging but very blessed life when I look at yours..... full of love of family and friends!
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